Whew that is a lot. Lets back up a couple of years. In 2019, Kyra was living on campus in the dorms. When she would come for a visit we noticed how much weight she had lost and she did not appear well. We struggled with her for months to get her health under control and she assured us she was trying. Well, momma being momma, took over. We got a medical POA, with Kyra's permission and the hunt for what was wrong began. We started with the gastroenterologist because she was not able to hold any food down. After months and a birage of tests, she was cleared 100% from the gastro. That is when things began to get evern more complex. The gastro suggested a brain MRI to make sure that there was not a tumor. (Words no parent ever wants to hear.) Her endocrinologist refused to order the brain MRI and once again wanted to treat her for depression only instead of finding the root cause. We went to her primary doctor who ordered the brain MRI the first part of November. The day of the results will forever be etched in my mind. Our primary doctor came into the room, threw the reports on the table between Kyra and I and said "I thought once you would be normal, but no." I did not hear much after that as the NO stuck, embedded in my brain thinking it was a tumor. What was said after NO would put our lives in a fast paced tail spin.. "You have Chiari Malformation. I do not know what that is and had to look it up." The next few days we spent finding a chiari specialist. She saw two of the best. The first one passed us off and basically said, deal with it. The second one, who was trained by the first, agreed that surgery would be a great option for her.
December 31, 2019, Kyra had chiari malformation surgery. Surgery consisted of removing a one inch square piece of her skull at the base of her skull and adding a patch to her dura covering her brain. Recovery was supposed to be three months but thanks to COVID it became 5-6 months before she was released. The day she got to ride again, oh the smile she had on her face. It was amazing. Through all the surgery, pain, and recovery, she remained in SHSU. Most of her professors worked with her because she could not drive; however, some did not which reflected on her grades in her class.
One year post surgery and we can finally say SHE IS STABLE! Stable with Addisons and Chiari. So many blessings have come through this journey but the love and support of not only her immediate family but you all has held us more than you will ever know.